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1.
BMC Public Health ; 24(1): 776, 2024 Mar 12.
Artigo em Inglês | MEDLINE | ID: mdl-38475781

RESUMO

BACKGROUND: The elderly, especially those with physical disabilities, often encounter barriers that prevent them from accessing outdoor activities. Their perceptions of the convenience of accessing outdoor activities may be influenced by various factors including their health, the social context, and/or planned behavior. This study aimed to develop predictive models that identify the principal determinants of perceived convenience among this demographic, and it also examined the disparities observed between genders. METHODS: This was a cross-sectional survey of 1216 community-dwelling older people with physical disabilities in rural China. Grounded on the rehabilitation concepts and the theory of planned behavior, structural equation models integrated health and social behavior factors were constructed to predict perceived convenience of accessing outdoor activities. The standardized coefficients explained the contributions of various factors to the variance. RESULTS: The final structural models demonstrated good fit for both female and male participants. Perceptions of the convenience of accessing outdoor activities among both women and men were directly impacted by their physical functioning and their intention to participate, and indirectly by medical expenditure, subjective norms, pain, and role limitation in emotional interactions. Positive mental health was more influential for women, while men were more influenced by subjective norms. CONCLUSIONS: Structural equation models have effectively predicted the self-reported convenience of accessing outdoor activities, underscoring the importance of functional and behavioral rehabilitation. Furthermore, gender-sensitive rehabilitation programs are advised to promote engagement in outdoor activities among elderly individuals with physical disabilities.


Assuntos
Pessoas com Deficiência , Intenção , Humanos , Masculino , Feminino , Idoso , Estudos Transversais , Pessoas com Deficiência/psicologia , Autorrelato , Modelos Teóricos , Inquéritos e Questionários
2.
Am J Mens Health ; 18(1): 15579883231221390, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38311904

RESUMO

Exploring the post-injury lives of those who have survived gunshot wounds is essential to understanding the entire scope of firearm violence. The lives of Black male firearm violence survivors are transformed in various ways due to their injuries both visible and invisible. This study explored how Black men who suffer from disabilities via a firearm negotiated their masculine identities. Semi-structured, qualitative interviews were conducted with 10 violently injured Black men participating in a hospital-based violence intervention program. Survivors expressed their thoughts on how their injuries impacted their manhood and masculinities. Three themes emerged: (1) perceptions of manhood, (2) loss of independence and burden on others, and (3) and mobility. These themes highlighted and described how their lives were impacted post-injury and characterized their psychological and physical experience of recovery. The research findings suggest the need for more qualitative studies to further explore the relationship between firearm injury, Black masculinity, and perceptions of manhood. While Black men are understudied in health research and invisible in disability research, they continue to be hyper-invisible when discussing violently acquired disabilities.


Assuntos
Atividades Cotidianas , Negro ou Afro-Americano , Pessoas com Deficiência , Masculinidade , Violência , Ferimentos por Arma de Fogo , Humanos , Masculino , Atividades Cotidianas/psicologia , Negro ou Afro-Americano/psicologia , Negro ou Afro-Americano/estatística & dados numéricos , População Negra , Efeitos Psicossociais da Doença , Pessoas com Deficiência/psicologia , Armas de Fogo , Estado Funcional , Identidade de Gênero , Hospitalização , Limitação da Mobilidade , Violência/etnologia , Violência/prevenção & controle , Violência/psicologia , Ferimentos por Arma de Fogo/etnologia , Ferimentos por Arma de Fogo/psicologia , Pesquisa Qualitativa
3.
BMC Public Health ; 24(1): 389, 2024 02 06.
Artigo em Inglês | MEDLINE | ID: mdl-38321421

RESUMO

BACKGROUND: Improving people with disabilities' participation in sports and cultural activities benefits their physical and mental health. However, only a few studies have examined the factors that influence participation systematically. METHODS: Using the survey data gathered from 4,319 disabled people living in a district in Wuhan, China, this study explored the impacts of sports and cultural activity participation in terms of individual physiological characteristics, socioeconomic factors, and built environmental features. The sports and cultural facility supply and the walkability index of their community environment were calculated to assess built environment features. Binary logistic regression models were also used to investigate the influence of the aforementioned variables. RESULTS: There is a significant positive correlation between sports and cultural activity participation and education (OR = 3.44, p < 0.01), employment status (OR = 2.04, p < 0.01), as well as the number of cultural facilities (OR = 1.33, p < 0.01) in the neighborhood area. No significant association was found between the inclination to participate frequently and individual psychological factors. CONCLUSION: Regarding people with disabilities' participation in sports and cultural activities, socioeconomic and built environment factors are more influential than individual psychological ones. The findings can give ideas for identifying targeted and comprehensive interventions to promote a healthy lifestyle for people with disabilities.


Assuntos
Pessoas com Deficiência , Esportes , Humanos , Esportes/psicologia , Pessoas com Deficiência/psicologia , Meio Social , Meio Ambiente , Inquéritos e Questionários
4.
Arch Gerontol Geriatr ; 121: 105357, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38340587

RESUMO

OBJECTIVES: This longitudinal cohort study aimed to examine the effect of intrinsic capacity (IC) and multimorbidity on the development of new disabilities. METHODS: The study utilized data from 1,009 participants without disabilities from the I-Lan Longitudinal Aging Study. Multivariable logistic regressions were employed to assess the predictive capability of IC (ranging from 0 to 100) and multimorbidity for incident disability over a 7-year follow-up period. RESULTS: Both low IC (OR 4.9, 95 % CI 2.1-11.1, p < 0.001) and multimorbidity (OR 4.5, 95 % CI 2.2-9.2, p < 0.001) significantly predicted incident disability over the 7-year period. A one-point increase in IC reduced the risk of incident disability by 10 % (OR 0.9, 95 % CI 0.8-0.9, p < 0.001). Among IC subdomains, both better locomotion (OR 0.96, 95 % CI 0.94-0.99, p = 0.014) and psychology (OR 0.97, 95 %CI 0.94-1.00, p = 0.049) significantly reduced the risk of incident disability. Rapid declines in IC significantly predicted incident disability (OR 4.1, 95 % CI 1.8-9.3, p = 0.001), whereas the onset of new multimorbidity or changes in the number of chronic conditions did not demonstrate a significant association with incident disability. The interaction terms between IC and multimorbidity, both categorically (low IC * multimorbidity, p = 0.959) and numerically (IC (per point) * multimorbidity, p = 0.660) were all statistically insignificant. CONCLUSIONS: IC exhibited better predictive capacity for 7-year incident disability compared to multimorbidity, so health care services targeting older adults should adopt an integrated care approach that combines both function- and disease-centric strategies.


Assuntos
Pessoas com Deficiência , Multimorbidade , Humanos , Idoso , Estudos Longitudinais , Envelhecimento , Estudos de Coortes , Pessoas com Deficiência/psicologia
5.
Cuad. psicol. deporte ; 24(1): 95-106, Ene 2, 2024. tab
Artigo em Espanhol | IBECS | ID: ibc-229621

RESUMO

Se investigó la diferencia existente entre el nivel de resiliencia de personas con discapacidad física, comparando deportistas de alto rendimiento y personas no deportistas. Se realizó un muestreo por conveniencia con la participación de 20 personas con discapacidad física, 10 deportistas de alto rendimiento de Boyacá y 10 no deportistas; ambos grupos con 6 hombres y 4 mujeres, con edades entre los 19 y 25 años. Estudio de enfoque cuantitativo, de corte transversal y tipo comparativo no experimental, utilizando el instrumento Escala de Resiliencia de Wagnild y Young (1993), validado y estandarizado por Gómez (2019). Los resultados evidencian una diferencia de medias superior para el grupo de deportistas de rendimiento en comparación con los no deportistas, sin embargo, dicha diferencia no fue estadísticamente significativa (t(18) = 1.38; p= .092) concluyendo que el deporte de alto rendimiento es uno de muchos factores que favorecen la resiliencia en personas con discapacidad física.(AU)


The difference in resilience levels of people with physical disabilities was investigated by comparing high-performance and non-athlete athletes. A convenience sampling was conducted with the participation of 20 people with physical disabilities, 10 high-performance athletes from Boyacá, and 10 non-athletes; groups with 6 men and 4 women, aged between 19 and 25 years. The study had a quantitative, cross-sectional, comparative, and non-experimental design, using the Resilience Scale of Wagnild and Young (1993), validated and standardized by Gómez (2019). The results show a higher mean difference for the group of performance athletes compared to non-athletes;however, this difference was not statistically significant (t(18) = 1.38; p= .092), concluding that sport High performance is one of many factors that promote resilience in people with physical disabilities.(AU)


A diferença nos níveis de resiliência de pessoas com deficiência física foi investigada comparando atletas de alto rendimento e não atletas. Foi realizada uma amostragem por conveniência com a participação de 20 pessoas com deficiência física, 10 atletas de alto desempenho de Boyacá e 10 não atletas; ambos os grupos com 6 homens e 4 mulheres, com idades entre 19 e 25 anos. O estudo teve um design quantitativo, transversal, comparativo e não experimental, usando a Escala de Resiliência de Wagnild e Young (1993), validada e padronizada por Gómez (2019). Os resultados mostram uma diferença média maior para o grupo de atletas de rendimento em comparação aos não atletas, porém, essa diferença não foi estatisticamente significativa (t(18) = 1,38; p= 0,092), concluindo que o alto rendimento esportivo é um dos muitos fatores que promovem a resiliência em pessoas com deficiência física.(AU)


Assuntos
Humanos , Masculino , Feminino , Adulto Jovem , Desempenho Atlético , Resiliência Psicológica , Atletas/psicologia , Pessoas com Deficiência/psicologia , Adaptação Psicológica , Esportes para Pessoas com Deficiência , Psicologia do Esporte , Esportes/psicologia , Medicina Esportiva , Epidemiologia Descritiva , Estudos Transversais , Estudos de Avaliação como Assunto
6.
BMJ Open ; 14(1): e076314, 2024 01 25.
Artigo em Inglês | MEDLINE | ID: mdl-38272556

RESUMO

INTRODUCTION: China is one of the countries with the highest burden of hypertensive intracerebral haemorrhage (HICH), and its morbidity and mortality rates are almost twice the world average. Most survivors experience negative emotions such as anxiety and depression due to symptoms such as speech disorders, dysphagia, cognitive impairment, hemiplegia and ataxia. While evidence has emerged, supporting the acceptance of disability is a major factor in psychosocial adjustment of patients with disabilities. However, most relevant studies mainly focus on cross-sectional design, and the impact of disability on physical and mental health is a complex and comprehensive process, and its mechanism is still unclear. Therefore, we aimed to use the latent growth mixture model (LGMM) and the decision tree model to analyse the trajectory and predictors of disability acceptance in patients with HICH from stable hospitalisation to 2 years after discharge. METHODS AND ANALYSIS: The objective of this prospective study will be to examine the 2-year trajectory of disability acceptance in a cohort of persons with HICH. 180 participants will be recruited, and baseline general data collection, disability acceptance, family caring index and self-efficacy of chronic disease will be conducted. All of them will be followed up at the stable hospitalisation period, 6 month, 1 year and 2 year after discharge using the same protocol. As a major result, disability acceptance trajectories and potential categories will be analysed using LGMM. Additionally, the independent variables with statistical significance will be included in the decision tree model, and the Classification And Regression Trees(CART) algorithm programme will be used to construct the prediction model of influencing factors of disability acceptance trajectory. The exploratory outcome will provide scientific basis for the optimal intervention time point and the formulation of rehabilitation measures for this population. ETHICS AND DISSEMINATION: Ethical approval was obtained from the medical research ethics committee of Heyuan People's Hospital (YXYJLL-2022S58). The results will be disseminated nationally and internationally through the publication of research papers. TRIAL REGISTRATION NUMBER: ChiCTR2300071778.


Assuntos
Pessoas com Deficiência , Hemorragia Intracraniana Hipertensiva , Humanos , Estudos Prospectivos , Estudos Longitudinais , Estudos Transversais , Pessoas com Deficiência/psicologia
7.
Disabil Health J ; 17(2): 101576, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-38216418

RESUMO

We propose a framework for guiding research on perinatal health in people with intellectual disability (ID). We developed this framework based on the perinatal health framework for people with physical disabilities, American Association on Intellectual and Developmental Disabilities conceptual framework of human functioning, disability reproductive justice framework, trauma-informed care, and socio-ecological model. The framework reflects health outcomes of birthing people with ID and their infants that result from interactions of factors across the life course at policy (health, social, and disability policies), community (attitudes, social and physical environment), institutional (health care delivery-related factors, access to information/resources), interpersonal (social determinants of health/histories of trauma, social support, interactions with service-providers), and individual levels (demographics, intellectual functioning, adaptive behavior, health conditions, genetic factors, psychosocial factors, health behaviors). This framework will facilitate research to identify factors leading to perinatal health disparities in people with ID and development and evaluation of resources to address them.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Gravidez , Feminino , Humanos , Deficiência Intelectual/psicologia , Pessoas com Deficiência/psicologia , Comportamentos Relacionados com a Saúde , Apoio Social , Adaptação Psicológica
8.
Qual Life Res ; 33(2): 411-422, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-37906346

RESUMO

PURPOSE: The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) is a widely used disability-specific outcome measure. This study develops mapping algorithms to estimate Assessment of Quality of Life (AQoL)-4D utilities based on the WHODAS 2.0 responses to facilitate economic evaluation. METHODS: The study sample comprises people with disability or long-term conditions (n = 3376) from the 2007 Australian National Survey of Mental Health and Wellbeing. Traditional regression techniques (i.e., Ordinary Least Square regression, Robust MM regression, Generalised Linear Model and Betamix Regression) and machine learning techniques (i.e., Lasso regression, Boosted regression, Supported vector regression) were used. Five-fold internal cross-validation was performed. Model performance was assessed using a series of goodness-of-fit measures. RESULTS: The robust MM estimator produced the preferred mapping algorithm for the overall sample with the smallest mean absolute error in cross-validation (MAE = 0.1325). Different methods performed differently for different disability subgroups, with the subgroup with profound or severe restrictions having the highest MAE across all methods and models. CONCLUSION: The developed mapping algorithm enables cost-utility analyses of interventions for people with disability where the WHODAS 2.0 has been collected. Mapping algorithms developed from different methods should be considered in sensitivity analyses in economic evaluations.


Assuntos
Pessoas com Deficiência , Qualidade de Vida , Humanos , Qualidade de Vida/psicologia , Austrália , Pessoas com Deficiência/psicologia , Organização Mundial da Saúde , Avaliação da Deficiência , Inquéritos e Questionários , Reprodutibilidade dos Testes
9.
Ann Clin Transl Neurol ; 11(2): 404-413, 2024 02.
Artigo em Inglês | MEDLINE | ID: mdl-38059703

RESUMO

OBJECTIVE: Stroke causes serious physical disability with impaired quality of life (QoL) and heavy burden on health. The goal of this study is to explore the impaired QoL typologies and their predicting factors in physically disabled stroke survivors with machine learning approach. METHODS: Non-negative matrix factorization (NMF) was applied to clustering 308 physically disabled stroke survivors in rural China based on their responses on the short form 36 (SF-36) assessment of quality of life. Principal component analysis (PCA) was conducted to differentiate the subtypes, and the Boruta algorithm was used to identify the variables relevant to the categorization of two subtypes. A gradient boosting machine(GBM) and local interpretable model-agnostic explanation (LIME) algorithms were used to apply to interpret the variables that drove subtype predictions. RESULTS: Two distinct subtypes emerged, characterized by short form 36 (SF-36) domains. The feature difference between worsen QoL subtype and better QoL subtype was as follows: role-emotion (RE), body pain (BP) and general health (GH), but not physical function (PF); the most relevant predictors of worsen QoL subtypes were help from others, followed by opportunities for community activity and rehabilitation needs, rather than disability severity or duration since stroke. INTERPRETATION: The results suggest that the rehabilitation programs should be tailored toward their QoL clustering feature; body pain and emotional-behavioral problems are more crucial than motor deficit; stroke survivors with worsen QoL subtype are most in need of social support, return to community, and rehabilitation.


Assuntos
Pessoas com Deficiência , Acidente Vascular Cerebral , Humanos , Qualidade de Vida/psicologia , Acidente Vascular Cerebral/complicações , Pessoas com Deficiência/psicologia , Sobreviventes/psicologia , Dor
10.
Aging Ment Health ; 28(1): 62-72, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-37646779

RESUMO

OBJECTIVES: This study used the World Health Organization's healthy ageing framework to explore longitudinal influences of environment profiles and social participation (SP) patterns on depressive symptoms (DSs) and on quality of life (QOL). METHODS: Data were collected from a sample of community-dwelling older adults in Taiwan in 2018 (T1; N = 1,314) and a follow-up survey in 2020 (T2; N = 831). Latent class analysis was conducted to obtain environment and SP profiles. Multilevel modeling was carried out to explicate the hypothesized associations. RESULTS: Three unique environment profiles, labeled as Highly- (Highly-FE), Moderately- (Moderately-FE) and Weakly-Facilitative Environment (Weakly-FE), were identified from T1 data. The three SP classes that were obtained from T1 and T2 data denoted High-, Moderate- and Low-SP. Participants in the 'Highly-FE' class were more likely to belong to the 'High-SP' and 'Moderate-SP' subgroups and exhibited significantly fewer DSs and better QOL. The associations were confirmed both cross-sectionally and longitudinally. CONCLUSION: Interventions should be developed to promote or maintain preferred SP to maximize the current and future mental health and subjective well-being of disabled older adults.


Assuntos
Pessoas com Deficiência , Participação Social , Humanos , Idoso , Qualidade de Vida/psicologia , Depressão/epidemiologia , Depressão/psicologia , Vida Independente , Pessoas com Deficiência/psicologia , Estudos Longitudinais
11.
Eur J Hum Genet ; 32(1): 83-90, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-37460655

RESUMO

Neurofibromatosis 1 (NF1) is a multisystem disorder associated with, for example, a high risk for cancer, a variety of behavioral and cognitive deficits, low educational attainment and decreased income. We now examined the labor market participation of individuals with NF1. We analyzed the numbers of days of work, unemployment, and sickness allowance among 742 Finnish individuals with NF1 aged 20-59 years using nationwide register data from Statistics Finland and the Social Insurance Institution of Finland. The individuals with NF1 were compared with a control cohort of 8716 individuals matched with age, sex, and the area of residence. Individuals with NF1 had a significantly lower number of working days per year than the controls (rate ratio [RR] 0.93, 95% CI 0.91-0.95). Unemployment (RR 1.79, 95% CI 1.58-2.02), and sickness absence (RR 1.44, 95% CI 1.25-1.67) were more frequent in the NF1 than in the control group. The causes of sickness allowances were highly concordant with the previously reported morbidity profile of NF1 including neoplasms, cardiovascular disease, mental and behavioral diseases, and neurological diseases. In conclusion, NF1 significantly interferes with labor market participation via both unemployment and morbidity. Unemployment seems to cause more days of not working than sickness absence.


Assuntos
Pessoas com Deficiência , Neurofibromatose 1 , Humanos , Desemprego/psicologia , Finlândia/epidemiologia , Estudos de Coortes , Neurofibromatose 1/epidemiologia , Pessoas com Deficiência/psicologia , Morbidade
12.
Arch Phys Med Rehabil ; 105(2): 303-313, 2024 02.
Artigo em Inglês | MEDLINE | ID: mdl-37607656

RESUMO

OBJECTIVE: To use structural equation modeling to test research- and theory-informed models of potential predictors and outcomes of subjective experiences of employment and mobility participation in a national sample of people with physical disabilities. DESIGN: Cross-sectional survey. SETTING: Canada. PARTICIPANTS: English or French-speaking adults with a physical impairment affecting mobility and restricting activities or participation, and who participated in employment (n=457) or mobility (n=711) life domains. INTERVENTIONS: N/A. MAIN OUTCOME MEASURES: Participants completed standardized measures of perceived health, and employment-specific and/or mobility-specific measures of perceived abilities, social support, accessibility and policies (predictor variables); the Measure of Experiential Aspects of Participation (MeEAP) in employment and/or mobility; and standardized measures of emotional well-being, social well-being and life satisfaction (outcome variables). RESULTS: Analyses using structural equation modeling showed that in both employment and mobility domains, perceived health, abilities, social support, and accessibility were positively related to experiential aspects of participation. Participation experiences were positively related to social well-being, emotional well-being, and life satisfaction. CONCLUSIONS: Results support and extend current theorizing on participation experiences among adults with physical disabilities. Intrapersonal and environmental factors may play a role in optimizing participation experiences in employment and mobility which, in turn, may lead to better well-being and life satisfaction. These results emphasize the importance of conceptualizing participation from an experiential perspective and provide a basis for advancing theory and practice to understand and improve the participation experiences and well-being of adults living with physical disabilities.


Assuntos
Pessoas com Deficiência , Participação Social , Adulto , Humanos , Estudos Transversais , Pessoas com Deficiência/psicologia , Apoio Social , Emprego
13.
Psychol Sport Exerc ; 70: 102535, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-37696314

RESUMO

Sport and exercise participation are associated with small, albeit positive changes in subjective well-being (SWB). Recent theorizing has emphasized the importance of distinguishing between performance aspects (i.e., frequency, intensity, time engaged) and the experiential aspects of sport and exercise participation among people with disabilities. This study assessed the relative contributions of time spent participating in sport and exercise (a performance measure) versus measures of participation experiences, in explaining variance in SWB. Participants were 535 adults with physical disabilities, recruited through a nation-wide survey, who participated in sport (n = 271; 62% male; 44 ± 14 years) or exercise (n = 264; 42% male; 57 ± 14 years). They completed measures of minutes/week of sport or exercise participation, experiential aspects of participation, and SWB (overall life satisfaction, satisfaction with physical, psychological and social life-domains, and positive/negative affect). Hierarchical multiple regression analyses showed minutes/week of sport did not explain significant variance in any SWB measure, but sport participation experiences explained significant variance (9.2%-20.9%) in all SWB measures (p < 0.05). Similarly, minutes/week of exercise explained significant variance only in physical life-domain satisfaction (ΔR2 = 2.6%, p = 0.026), but exercise participation experiences explained significant variance (4.8%-10.7%) in all SWB measures (p < 0.05). Experiences of belonging and mastery were particularly strong, consistent predictors across SWB outcomes. These results suggest participation experiences better explain relationships between sport and exercise participation and SWB than time spent performing sport and exercise. Findings have implications for designing future studies to test the effects of sport and exercise on SWB, and developing theories and interventions to explain and maximize the use of sport and exercise to improve SWB in adults with disabilities.


Assuntos
Pessoas com Deficiência , Esportes , Adulto , Humanos , Masculino , Feminino , Esportes/psicologia , Exercício Físico/psicologia , Pessoas com Deficiência/psicologia , Satisfação Pessoal
14.
Siglo cero (Madr.) ; 55(1)2024. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-231116

RESUMO

Las políticas sociales buscan relevar a la familia de las personas con discapacidad y dependencia en su papel de cuidadores. Sin embargo, en numerosas ocasiones, estas familias no disponen de todos los recursos necesarios para afrontar estas situaciones de cuidado. El objetivo general del presente trabajo es conocer la percepción sobre los recursos de los que disponen los familiares de personas con discapacidad. Se trata de un estudio cualitativo mediante entrevista estructurada, no experimental ex post facto, de carácter descriptivo y de tipo transversal. La muestra total fueron 27 personas familiares de personas con discapacidad. Para el análisis de las respuestas se empleó el programa JASP y se realizó estadística descriptiva y correlacional. Los resultados indican que el recurso más reconocido y utilizado es el referido a las prestaciones económicas, así como la atención temprana y los colegios de educación especial. Las mujeres son mayoritarias en el cuidado de estas personas, señalando estas mujeres un gasto de energía, por lo que podría ser recomendable mejorar la eficiencia y la eficacia de los programas de respiro familiar. (AU)


Social policies seek to relieve the family of people with disabilities and dependency in their role as caregivers. However, on numerous occasions, these families do not have all the necessary resources to deal with these care situations. The general objective of this study is to find out the perception of the resources available to family members of people with disabilities in Spain. This is a qualitative study using a structured interview, non-experimental ex post facto, descriptive and cross-sectional in nature. The total sample consisted of 27 relatives of people with disabilities. The JASP programme was used to analyse the responses, and descriptive and correlational statistics were performed. The results indicate that the most recognized and used resource is the one referred to economic benefits, as well as early care and special education schools. Women are in the majority in the care of these people, who report an expenditure of energy, so it could be advisable to improve the efficiency and effectiveness of family respite programmes. (AU)


Assuntos
Humanos , Masculino , Feminino , Adulto Jovem , Adulto , Pessoa de Meia-Idade , Idoso , Pessoas com Deficiência/psicologia , Ajuda a Famílias com Filhos Dependentes , Estudos sobre Deficiências , Estudos de Avaliação como Assunto , Inquéritos e Questionários , Epidemiologia Descritiva , Estudos Transversais , Financiamento Governamental
15.
Issues Ment Health Nurs ; 44(12): 1179-1187, 2023 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38048542

RESUMO

Mental health nurses with disabilities experience discrimination and issues with inclusion and accessibility. Ten mental health nurses who self-identified with a disability were interviewed using interpretive description to gain insight into their experiences and to better understand practices that promote inclusion. Participants discussed challenges associated with the mental healthcare system, the need to adapt, and the importance of support and feeling accepted. To improve accessibility and inclusion of mental health nurses, the system requires increased flexibility. This would benefit all nurses and those who are cared for by them.


Assuntos
Pessoas com Deficiência , Enfermeiras e Enfermeiros , Enfermagem Psiquiátrica , Humanos , Saúde Mental , Local de Trabalho , Pessoas com Deficiência/psicologia
16.
Pol Merkur Lekarski ; 51(5): 504-510, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-38069851

RESUMO

OBJECTIVE: Aim: reveal in social work the possibilities of applying adaptive physical activity in the process of social inclusion of persons with disabilities. PATIENTS AND METHODS: Materials and Methods: To obtain factual information, the survey method (questionnaire) and a complex of mathematical statistics methods were used: methods of descriptive statistics and correlation analysis. Statistical analysis was performed using SPSS Statistics 24.0.0. A total of 102 anonymous respondents took part in the focus groups. RESULTS: Results: The connection between adaptive physical activity and the increase in the level of social inclusion of persons with disabilities, in particular, former military personnel and war veterans, was investigated. It was determined that social work professionals can use adaptive physical activity tools to promote the social inclusion of persons with disabilities and other low-mobility population groups. CONCLUSION: Conclusions: It was established that the ways of using adaptive physical activity tools by social workers for the social inclusion of persons with disabilities are most often socio-psychological, physical, professional rehabilitation, social support, and preventive activities. New opportunities for the implementation of social inclusion by means of adaptive physical activity of persons with disabilities as a result of military operations are opened in connection with the introduction of the position of «helper (assistant) of a veteran in the community¼, which will be held by a social worker.


Assuntos
Pessoas com Deficiência , Veteranos , Humanos , Inclusão Social , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/reabilitação , Serviço Social , Veteranos/psicologia , Exercício Físico
17.
Disaster Med Public Health Prep ; 17: e559, 2023 Dec 12.
Artigo em Inglês | MEDLINE | ID: mdl-38084598

RESUMO

OBJECTIVE: Individuals with physical disabilities experience distress when faced with the threat of human-made and natural disasters, yet little is known about how to reduce that distress. This study used Protection Motivation Theory to longitudinally test the relationships between psychological distress and disaster-related cognitive appraisals, including perceived threat, emergency preparedness self-efficacy, and response efficacy, in a sample of individuals with physical disabilities. METHODS: A nationwide convenience sample of 106 adults completed 2 surveys approximately 5 years apart. Structural equation modeling was used to assess effects of perceived threat, self-efficacy, and response efficacy on psychological distress across the 2 waves. RESULTS: Our results suggest that the associations of proximal perceived threat and self-efficacy with psychological distress remain stable across time, while the effect of response efficacy is variable and may be more context-specific. Importantly, individuals who reported an increase in self-efficacy over time also reported (on average) a decrease in psychological distress. CONCLUSIONS: In addition to broadening our understanding of factors related to psychological distress, these results have potentially important intervention implications; for example, to the extent that self-efficacy is a malleable construct, one way of reducing disaster-related psychological distress may be to increase an individual's self-efficacy.


Assuntos
Pessoas com Deficiência , Planejamento em Desastres , Desastres , Angústia Psicológica , Adulto , Humanos , Pessoas com Deficiência/psicologia , Inquéritos e Questionários , Estresse Psicológico/etiologia , Estresse Psicológico/psicologia
18.
BMJ Open ; 13(11): e074384, 2023 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-37914309

RESUMO

OBJECTIVES: This study aims to explore the overall and specific aspects of the functioning of medical laboratory professionals (MLPs) in Ontario, Canada during the COVID-19 pandemic. DESIGN: A cross-sectional analysis where a questionnaire was used to assess the mental status of MLPs. SETTING: An online questionnaire administered in Ontario, Canada. PARTICIPANTS: 632 MLPs (medical laboratory technologists, technicians and assistants) were included. MAIN OUTCOME MEASURES: We employed the WHO Disability Assessment Schedule V.2.0 (WHODAS V.2.0) Questionnaire to assess functioning/disability and Copenhagen Psychosocial Questionnaire, third edition for psychosocial workplace factors. Multiple regression analysis examined the relationship between overall and specific domain functioning scores and psychosocial workplace factors. RESULTS: Of the total 632 participants, the majority were female gender and Caucasian. It was found that health (ß=2.25, p<0.001, CI: 1.77 to 2.73), management of environmental conditions (ß=0.65, p<0.001, CI: 0.33 to 0.98), fear of unemployment (ß=-0.72, p<0.001, CI: -1.09 to -0.35) and frequency of stress (ß=-1.86, p<0.001, CI: -2.33 to -1.40), in addition to bullying exposure (ß=0.56, p<0.01, CI: 0.15 to 0.98) and threats of violence exposure (ß=0.90, p<0.01, CI: 0.25 to 1.54), significantly decreased functioning overall and within the specific WHODAS V.2.0 functioning domains. CONCLUSION: This study provides preliminary evidence of the overall and specific aspects of functioning among the MLPs during the COVID-19 pandemic. Besides, these findings can support and guide the improvement of workplace practices and policies among MLPs in the future.


Assuntos
COVID-19 , Pessoas com Deficiência , Humanos , Masculino , Feminino , COVID-19/epidemiologia , Ontário/epidemiologia , Pandemias , Estudos Transversais , Pessoas com Deficiência/psicologia
19.
J Genet Couns ; 32(6): 1131-1143, 2023 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-37877329

RESUMO

The genetic counseling (GC) community has faced criticism about the duality of promoting patient autonomy while also advocating for individuals with disabilities. This study assessed the attitudes of the disability community and GCs to identify content that should be included in GC disability education and evaluate the landscape of GC disability education. Members of the disability community and GCs completed an electronic survey distributed through electronic listservs and partnering organizations. A total of 672 responses were analyzed from both the disability community (n = 596) and the GC community (n = 76). Members of the disability community noted differences in GC comfort level discussing different aspects of disability with GCs being perceived as being very knowledgeable about medical aspects 71% of the time versus 49% of the time when discussing social/lifestyle aspects of disability. This discordance was reflected in GCs reported comfort level in discussing medical aspects (89%) and social aspects of disability (65%) during a session. Most GC respondents (71%) felt they received adequate knowledge during their disability education and variation was reported in the execution of disability education by training programs. Disability education content recommendations from the disability community and GCs included emphasizing four key aspects of disability: medical, social/lifestyle, lived experience, and the disability rights movement. Respondents of both cohorts stressed the inclusion of and exposure to persons with disabilities in disability education to understand the lived experience of persons with disabilities. The disability community identified additional disability education content to be included such as empathy training, family hardships, and mental health. The results of this study have practice implications and provide a foundation for training expectations to ensure future GCs possess the necessary skills to improve the quality of services provided to families and persons with disabilities.


Assuntos
Conselheiros , Pessoas com Deficiência , Humanos , Conselheiros/psicologia , Pessoas com Deficiência/psicologia , Aconselhamento Genético/métodos , Inquéritos e Questionários
20.
Acta Psychol (Amst) ; 240: 104044, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-37806021

RESUMO

This study examined the effects of physical activity(PA) on the quality of life (QOL) of athletes with disabilities using sport and health theory. We administered a paper-based field questionnaire to 118 athletes with disabilities and used structural equation modeling to analyze the mechanisms of physical self-esteem (PSE) and satisfaction with life (SWL) in the role of PA and QOL in athletes with disabilities. RESULTS: 1) PA still had a significant positive effect on the QOL of athletes with disabilities mediated by PSE (ß = 0.206, p < .01,95 % CI = [0.11,0.306]); PA had a greater significant effect on QOL in athletes with disabilities when PSE and SWL were combined (ß = 0.206, p < .01,95 % CI = [0.11,0.306]); 3) PSE and SWL have an indirect effect of 32.18 % in PA affecting QOL in athletes with disabilities. CONCLUSION: 1) PA significantly improves PSE, SWL, and QOL for people with disabilities; 2) PSE and SWL can not only play separate mediating roles in the process of PA influencing the QOL of athletes with disabilities, but they can also work together to exert a co-mediating effect. This provides a theoretical basis for PA to enhance QOL or improve mental health.


Assuntos
Pessoas com Deficiência , Qualidade de Vida , Humanos , Qualidade de Vida/psicologia , Exercício Físico , Atletas/psicologia , Pessoas com Deficiência/psicologia , Satisfação Pessoal
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